69 - Stephanie Duesing on Cerebral/Cortical Visual Impairment(CVI)

In this episode I chat with Stephanie Duesing, author of the book Eyeless Mind, about her discovery that her son, Sebastian, had been living with undetected CVI for 15 years, and was almost completely blind.

We discuss the difference between ocular blindness and cerebral/cortical blindness, the event that led Stephanie to discover her son’s CVI, and how he processes sight with words, the importance of mobility and orientation skills to help navigate the world, and the challenges the Duesing family endured in trying to receive a diagnosis for Sebastian’s condition.

Contact Stephanie Duesing through her website, or on social media.
Website: https://stephanieduesing.com
Facebook: https://www.facebook.com/stephanieduesingauthor

And get hold of a copy of her book at https://a.co/d/eSOrhHh

Here are links to information about CVI:

https://cviscotland.org/

https://www.perkins.org/our-work/cvi/

https://www.nei.nih.gov/about/news-and-events/news/vision-loss-children-whose-eyesight-may-be-2020-requires-new-diagnostic-and-teaching-strategies

https://www.optometrytimes.com/view/getting-to-the-heart-of-pediatric-vision-loss-and-blindness

https://www.aph.org/product/vision-and-the-brain-understanding-cerebral-visual-impairment-in-children/

Contact Lois with podcast topics or guest suggestions at
Web: loisstrachan.com
Facebook: https://www.facebook.com/loisstrachanspeaker

This episode edited by Craig Strachan using Hindenburg PRO – find out more on Hindenburg.com
Credits and music by Charlie Dyasi of Naledi Media.