21 Jul What happens to my disabled son when I die?

Mark Neary’s recurring nightmare is that six months after his death, son Steven who has autism and learning disabilities will end up in a residential unit similar to the one where he spent most of 2010. A human rights court case (inline link) ruled that Steven’s detention was unlawful. Nowadays he lives independently, with support painstakingly managed by Mark. Routine is vital for Steven, so Mark hopes that a comprehensive death plan including everything from details on paying staff to instructions for making compilation tapes, will Keep his son’s life running smoothly after he’s gone.With Emma Tracey.Write and tell us what you're up to - Email ouch@bbc.co.uk tweet @bbcouch or find us on Facebook. Subscribe to Ouch as a weekly podcast and, if you wouldn't mind, we'd be delighted if you could review us on Apple Podcasts or wherever you get your podcasts from - it helps other people find us.
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